Allen will receive his second Intravenous Immunoglobulin (IVIG) treatment next week at the Central Texas Neurology Consultants Infusion Suite (six hours on both Monday and Tuesday).
He noticed some improvement following his initial treatment a month ago, which gave us, and his neurologist, Dr. Horvit, renewed hope that Allen's symptoms may not be due to Lou Gehrig's Disease (ALS).
The treatments he's receiving are only effective for certain conditions, including Multifocal Motor Neuropathy (MMN), which Dr. Horvit believes may be the cause of the weakness and muscle loss in Allen's hands and arms. The doctor will continue to monitor Allen as he completes three consecutive monthly IVIG treatments. After completing the treatments, he will test his strength and check for further nerve damage. At that point, he may be able to make a definitive diagnosis, but only time will tell. MMN and ALS are both devastating diagnoses, but ALS is life-threatening, and MMN is treatable, so we are hoping and praying for the "lesser of two evils."
The wait is an emotional rollercoaster. Some good days. Some not so good. We try our best to stay positive and not let fear take over. We try hard "not to sweat the small stuff" and take advantage of every opportunity to "live life to its fullest."
We recently went on vacation to a ranch in Uvalde, Texas. The downtime was much needed and we had a blast touring the terrain in Rangers and Razors, relaxing on the crystal clear Nueces River, stargazing, casting some rods, doing some competitive skeet shooting, and feeling the rush of hitting a 1,000 yard target with a long range rifle! There was a smorgasbord of food and beverage as well.
Spending quality time with family and friends is priceless and treasured. We realize, despite our recent challenges and obstacles, we are extremely blessed. We will continue to trust and believe that God ultimately has a plan.
Your continued thoughts and prayers are appreciated.